

Henry ate almost an ounce at his bottle feeding this morning. They are beginning the "bollus" feed in which I will feed him every three hours and they will supplement with the feeding tube. Because weighing before a feed and after a feed isn't always accurate I will continue to pump and feed him from a bottle :-( just so the numbers will be correct and we can get out of here. They are beginning the preparation for us leaving on Monday morning (by noon). Many people have come in regarding this so it feels really real. They are talking about and setting up training for us to keep the feeding tube in for a short while after we get home. We need to learn how to put the tube in, if it comes out and also so we can change it when needed. I am not certain how often they change it but I overheard the neighbors nurse say that theirs had expired and needs to be done. I can not believe how much we have to learn, medically speaking, I hope it sticks :-).
Henry was looking at me so sweetly this morning so I snapped a picture. He is so cute how he just searches your face and seems so content with just that.
Drew and George made it here by train yesterday. George was asleep when they got to the hospital. I carried him in and laid him on the "bed" in our room where he slept for three hours. When he woke up he came over and climbed into my arms as I was just finishing the bottle training with OT. He stayed there for a little bit looking at me and then Henry. He seems to be ok with all of this. He was a little bit puzzled but very much intrigued by the baby on the other side of the room and wondered why she was there. She is scheduled to be discharged today or tomorrow (I think) so it will be interesting to see who our new roommate will be. I wish we could move to the window but we will take what we get. Libby is going to take George to the zoo today which will be a lot of fun for him. I hope Libby has her running shoes on :-). George is a wild man and not at all condusive to hospital rooms and quiet hallways. He seemed quite determined to become a patient here at Children's - hopefully he will not succeed LOL!
No comments:
Post a Comment